{"id":31,"date":"2022-04-21T14:50:37","date_gmt":"2022-04-21T14:50:37","guid":{"rendered":"http:\/\/pandora-forscht.de\/?page_id=31"},"modified":"2025-09-10T09:22:13","modified_gmt":"2025-09-10T09:22:13","slug":"projektbeiraete","status":"publish","type":"page","link":"https:\/\/pandora-forscht.de\/en\/projektbeiraete\/","title":{"rendered":"Advisory boards"},"content":{"rendered":"\n<p><strong>Scientific advisory board<\/strong><\/p>\n\n\n\n<p>As a measure to ensure the scientific quality, two international experts accompany and advise the research project:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><a href=\"https:\/\/politikwissenschaft.univie.ac.at\/ueber-uns\/mitarbeiterinnen\/prainsack\/\" data-type=\"URL\" data-id=\"https:\/\/politikwissenschaft.univie.ac.at\/ueber-uns\/mitarbeiterinnen\/prainsack\/\" target=\"_blank\" rel=\"noreferrer noopener\">Univ.-Prof. Dr. Barbara Prainsack<\/a>, University of Vienna, Austria<\/li>\n\n\n\n<li><a href=\"https:\/\/www.eur.nl\/people\/hester-van-de-bovenkamp\" target=\"_blank\" rel=\"noreferrer noopener\">Prof. Dr. Hester M. van de Bovenkamp<\/a>, Erasmus University Rotterdam, the Netherlands<\/li>\n<\/ul>\n\n\n\n<p><strong>Patient representative advisory board<\/strong><\/p>\n\n\n\n<p>To involve the perspective of patient organizations and affected persons in all the important research steps of our project, a patient representative council supports our project from the beginning. The continuous involvement of the council, which advises the research team and provides critical input, ensures that the perspective of those affected is integrated in a forward-looking and appropriate manner.<\/p>\n\n\n\n<p>Members are among others:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Dr. Miriam Schlangen, <a href=\"https:\/\/www.muko.info\/englisch-version\/\" target=\"_blank\" rel=\"noreferrer noopener\">Mukoviszidose e.\u00a0V.<\/a>, Bundesverband Cystische Fibrose, Bonn<\/li>\n\n\n\n<li>Dr. iur. Wiebke Papenthin, Chair, <a href=\"http:\/\/www.morbus-wilson.de\" target=\"_blank\" rel=\"noreferrer noopener\">Morbus Wilson e. V.<\/a>, Kleinmachnow<\/li>\n\n\n\n<li>Thomas Duda, Head of Digitalization and Data Protection Officer,\u00a0<a href=\"https:\/\/www.pro-retina.de\/\" target=\"_blank\" rel=\"noreferrer noopener\">PRO RETINA Deutschland e. V.<\/a>, Bonn<\/li>\n\n\n\n<li>Franz Badura, Board Member and Political Speaker,\u00a0<a href=\"https:\/\/www.pro-retina.de\/\" target=\"_blank\" rel=\"noreferrer noopener\">PRO RETINA Deutschland e.\u00a0V.<\/a>, Bonn<\/li>\n\n\n\n<li>Thorsten Freikamp, Managing Director,\u00a0<a href=\"https:\/\/www.osteoporose-deutschland.de\/\" target=\"_blank\" rel=\"noreferrer noopener\">Bundesselbsthilfeverband f\u00fcr Osteoporose e. V.<\/a>, D\u00fcsseldorf<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Scientific advisory board As a measure to ensure the scientific quality, two international experts accompany and advise the research project: Patient representative advisory board To involve the perspective of patient organizations and affected persons in all the important research steps of our project, a patient representative council supports our project [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-31","page","type-page","status-publish","hentry"],"translation":{"provider":"WPGlobus","version":"3.0.2","language":"en","enabled_languages":["de","en"],"languages":{"de":{"title":true,"content":true,"excerpt":false},"en":{"title":true,"content":true,"excerpt":false}}},"_links":{"self":[{"href":"https:\/\/pandora-forscht.de\/en\/wp-json\/wp\/v2\/pages\/31","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/pandora-forscht.de\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/pandora-forscht.de\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/pandora-forscht.de\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/pandora-forscht.de\/en\/wp-json\/wp\/v2\/comments?post=31"}],"version-history":[{"count":6,"href":"https:\/\/pandora-forscht.de\/en\/wp-json\/wp\/v2\/pages\/31\/revisions"}],"predecessor-version":[{"id":2593,"href":"https:\/\/pandora-forscht.de\/en\/wp-json\/wp\/v2\/pages\/31\/revisions\/2593"}],"wp:attachment":[{"href":"https:\/\/pandora-forscht.de\/en\/wp-json\/wp\/v2\/media?parent=31"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}