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Scientific advisory board

As a measure to ensure the scientific quality, two international experts accompany and advise the research project:

• Univ.-Prof. Dr. Barbara Prainsack, University of Vienna, Austria
• Prof. Dr. Hester M. van de Bovenkamp, Erasmus University Rotterdam, the Netherlands

Patient representative advisory board

To involve the perspective of patient organizations and affected persons in all the important research steps of our project, a patient representative council supports our project from the beginning. The continuous involvement of the council, which advises the research team and provides critical input, ensures that the perspective of those affected is integrated in a forward-looking and appropriate manner.

Members are among others:

• Dr. Miriam Schlangen, Mukoviszidose e. V., Bundesverband Cystische Fibrose, Bonn
• Dr. iur. Wiebke Papenthin, Chair, Morbus Wilson e. V., Kleinmachnow
• Thomas Duda, Head of Digitalization and Data Protection Officer, PRO RETINA Deutschland e. V., Bonn
• Franz Badura, Board Member and Political Speaker, PRO RETINA Deutschland e. V., Bonn
• Thorsten Freikamp, Managing Director, Bundesselbsthilfeverband für Osteoporose e. V., Düsseldorf